Nicholas is really small for his age and it took a while before I decided that is spite of the doctors, who thought he did not have a heart condition, that we should do an echo. The echo discovered that he has three parts to his heart condition and that he will in fact need heart surgery as soon as I can arrange it. He has been eating well and is picking up weight nicely. I hope this constant feeding will help him prepare for the surgery.
Karlee on the other hand is looking more like a chipmunk everyday. After the second day, all she does is eat and sleep. That is music to my ears because when they do that I know all is well. Sean slept like this for four months and healed his heart in the process and I am hoping that Karlee will do the same. She has PFO which is a whole in a special place between the chambers of the heart. Dr Li thinks that it is possible that this could spontaneously heal and so we will monitor it and she how she does.
The cute thing has been to see Jade and especially Rebecca with the babies. The two of them play mother so well. Rebecca cannot get enough holding and loving on them. We have to protect them well because she will just smother them with kisses. They are hard pressed to understand why "baby" works for both of them but one is a "di-di" (little brother) and the other one is a "mei-mei" (little sister).
So here we are back to 20 babies at Starfish. We are waiting for Nathaniel/Will's family to come at the end of the month and maybe one of these days Gabriel's family will get their travel approval. They have been waiting such a long time ad I know he needs a family to spend one-on-one time with.
This is a few days later...... I called Dr Li and he asked me to come to Hangzhou immediately. We flew the next day. After we got here they redid a lot of the testing preparing him for surgery and then morning Dr Li talked to me about Nicholas. He told me that this is the most difficult case I have ever brought him and Nicholas has about a 90% chance of surviving the surgery. The other issue seems to be spina bifida. There is a strange thing happening at the back of his head. Because Nicholas need some time to fatten up Dr Li thought that he could wait for the surgery but that Nicholas needed to stay in Hangzhou in case of an emergency. Before we could arrange a foster family Nicholas started having seizures and landed up in the NICU where he is right now. They did a lumbar puncture which was negative and we have been waiting for more news. We left him in the NICU and came back to Xian for Nathaniel's adoption on Sunday. More in the next letter about that. I will be going back as soon as Nicholas is released from the NICU and then I will see what we can do about having him stay with a foster family while he gets some more nutrition.
Life, Love and Laughter in Hangzhou,
Amanda
Starfish Foster Home
Cell: 1348.812.4847
6 comments:
Thought you might like to know about this fundraiser for you (and us).
http://basketsforblessings.blogspot.com/
Heather BT, MaMa to Little Miss
http://adopakid.blogspot.com,
oops, http://adoptakid.blogspot.com
Amanda, I have followed your blog for over a year and you are an inspiration. We recently adopted our daughter from China with spina bifida and club feet. She is a wonder! I know you don't have time for this but I nominated you for a blog award and just wanted to let you know. Really it's just a way to get you even more noticed than you already are. But, if you want to accept the award you can follow the link to my blog and capture the button. I just wanted you to know that we think you are amazing!
Chelsea Gour
www.gourfamilyadoption.blogspot.com
What awesome work you are doing!! Thank you!! We have two adopted children, Emma-lia,3, from Chongqing in Feb. 07 with ASD and still waiting for repair and Nadya 12 from Siberia, Russia in 03. Each one is a prescious starfish!!
We began a new endeavor to care for these children as well. Our first trip will be Haiti with Africa following and who knows the future!!
www.achildshopeintl.org
Amanda, what precious babies. And I'm praying for Nathaniel tonight! I just added your blog to my bloglist. I want others to see what an awesome work is being done here. We will be hosting (fostering ) a hydrocephaly baby from Haiti who is coming to have a medical procedure done here in the US through Angel Mission. I hope to do more of this in the future. We have also adopted from China (sn boy) and are in process for Haiti. One day we would love to go to China and foster! Blessings, Terry
I think I meant to say I'm praying for Nicholas....
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